Rise in reported cases

Public Health England has now published provisional figures for Lyme disease for the third quarter of 2017 in the Health Protection Report , covering the period from January to September (weeks 0-39). As usual, this represents laboratory confirmed cases by the Rare and Imported Pathogens Laboratory (RIPL), based on positive Lyme serology tests of samples [...]

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Response to NICE draft

A Missed Opportunity? For 15 years Lyme Disease Action (LDA) has been consistently advocating science, and robust evidence, in striving for the prevention and treatment of Lyme disease. 5 years ago LDA funded research with the James Lind Alliance (JLA) to establish the top 10 ‘unknowns’ about Lyme disease in the UK which need research. [...]

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Preliminary response to draft guideline

LDA has been asked for comment by The Times and has provided the following preliminary statement for the press: ———————— We need time to look at the full documents in detail. The charity will be taking feedback from patients and healthcare professionals and will respond formally to NICE before the end of the consultation period in [...]

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Draft NICE guideline

NICE, the organisation responsible for clinical guidelines in England & Wales, has now published the Lyme disease draft guideline. This will remain on-line for a 6 week consultation period with the registered stakeholder organisations. If you would like to share any thoughts or concerns with us, please let us know via our email address document.write [...]

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Awareness raising among outdoor workers

We took a stand at a three day Arboricultural Association conference, attended by 400 people who either work outside or manage others who do. Awareness of ticks is key to avoiding Lyme disease and this is a health & safety issue  that needs to be high on many companies’ agendas. We had a very valuable [...]

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LDA 2017 Conference report

We gathered at Exeter University on 8th July for a full day of presentations at the 2017 LDA Conference. LDA’s Chair, Stella Huyshe-Shires, opened the proceedings with an overview of Lyme Disease in the UK, and its interactions and dependencies (both human and animal). Stella described the way ticks obtain and pass on infection to [...]

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Department of Health Reviews

In May 2016 the NHS Chief Scientist agreed with John Caudwell that he would commission 3 reviews and the Minister David Mowat said in parliament: “The Department of Health has commissioned three separate reviews on the diagnosis, treatment and transmission of Lyme disease. The work will be carried out by the epicentre of University College [...]

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Primary Care exhibition

Lyme Disease Action has just spent a very busy and successful couple of days, taking part in the Primary Care and Public Health event at the NEC in Birmingham. The event, in its 27th year, is considered to be the UK’s leading exhibition and conference event for a wide range of Primary Care and Public [...]

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APPG for Lyme disease

Two MPs, Simon Hoare and Michelle Donelan, have established an All Party Parliamentary Group (APPG) for Lyme disease. This follows several discussions with MPs through various patients and patient groups over many years, most recently a patient Deborah Collins who organised a meeting for MPs at Portcullis House through her MP in February this year. Simon [...]

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Training the first aid trainers

LDA attended a conference for first aid trainers in Dunfermline on March 3rd 2017. This was run by the First Aid Training Cooperative to provide information for trainers in Scotland and the North of England.     We held two workshops and were able to show delegates tubes of ticks (my goodness how small they [...]

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