Lyme disease requires government action and research to bring it under control


Ten Steps to better control of Lyme disease

Lyme Disease Action is calling upon the Government to take urgent steps to ensure that people who have Lyme disease are recognised and accorded their full human rights:

  1. By ensuring that people with Lyme disease receive prompt, adequate and appropriate treatment which, in some cases, may be long-term.
  2. By ensuring that more specialist clinicians trained in the clinical diagnosis, treatment and care of Lyme disease patients become available within the National Health Service.
  3. By ensuring that clinical guidelines for diagnosis and treatment of patients are developed for all medical staff and ending over-reliance on current laboratory tests in diagnosis.
  4. By ensuring that every effort be made to gain a reliable laboratory test or set of tests for Lyme borreliosis (Lyme disease) and closely associated tick-borne diseases.
  5. By ending over-reliance upon a tick bite risk assessment in the diagnostic procedures for Lyme disease.

Lyme Disease Action is calling upon the Government to take all possible measures to form an accurate assessment of the scale of the problem and to improve disease prevention measures:

  1. By granting notifiable status to Lyme disease throughout the United Kingdom.
  2. By ensuring that every effort be made to gain reliable case numbers of Lyme disease.
  3. By further assessment of tick surveillance procedures and their relationship to case numbers.
  4. By taking the lead in ensuring that full information on Lyme disease and its prevention is widely disseminated to all sectors of society.
  5. By urgently bringing about a programme of research into all aspects of Lyme disease and associated tick-borne diseases.

Lyme Disease Action is calling upon the government to do everything in its power to prevent people from falling victim to this potentially devastating disease.


Government response, April 2007.

Government response, June 2007.

Printable Information sheets

Info sheet 1 (EDM 958)

Info sheet 2 ( Ten Steps to better control of Lyme disease)

Info sheets 1 and 2, on one page A4


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Lyme Disease Action, Registered Charity Number 1100448, Registered Company Number 4839410
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