LDA uses meetings, seminars, conferences and exhibitions to raise awareness in health professionals as well as the general public.
Medical ExhibitionsPrimary Care Conference and Exhibition
Local AwarenessUplyme village fete
Supplying LeafletsAwareness leaflets sent out across the country
Public TalksCafé Scientifique Dorchester
Conference PresentationsNorTick conference, Norway
Helping ResearchTick collection for Liverpool University
Media InterviewsBBC Radio4 interview
Where we are going next
Meeting with volunteers February 8 2017, London. Discussing awareness and fundraising.
Ticks & tick-borne disease February 17 2017, Birmingham. Round table discussion with vets and Bristol University’s Big Tick Project
First Aid Conference, March 3 2017, Dunfermline. To provide first aid providers and trainers with information on ticks and tick removal.
Joint Royal College of Pathologists / PHE Conference, April 6 2017, London. LDA’s Medical Director will be giving a talk to infectious diseases doctors and microbiologists on the challenge of Lyme disease.
Primary Care and Public Health Conference & Exhibition, May 17 & 18 2017 Attending this major Primary Care Exhibition at the NEC to raise awareness amongst health professionals.
Meeting at PHE Porton, January 30, 217
Follow on discussion at Rare & Imported Pathogens Laboratory with laboratory staff and clinical scientists about testing.
Talk for Bodmin Rotary Club, December 14 2016
General awareness raising.
East Devon Ramblers Association AGM, November 27 2016
Following a request by this local group, we provided an awareness talk about ticks and Lyme disease.
Briefing for MPs, November 16 2016
At a meeting organised by Sir Hugo Swire MP, LDA briefed MPs on the current difficulties facing Lyme disease patients in the UK.
GP Webinar, October 27 2016
Presented live by Dr Sandra Pearson, LDA’s Medical Director “Unpicking Lyme disease- Issues and challenges in Primary Care”
LDA Annual Conference, September 17 2016.
This was held at Cambridge University. See our LDA conference page for details.
Meeting at RIPL, September 6 2016.
Discussing the interaction of the LDA help desk with patients, the NHS and PHE.
Exeter University, Biosciences department, July 19 2016
To discuss possibilities for research projects relating to immunological responses to tick-borne disease.
Ticks & Tick-borne Disease Risk in the UK Advisory Group Meeting, July 6 2016
Dr Sandra Pearson presented a talk “Tick-borne disease – the human perspective” to this group of mainly tick and veterinary experts. The meeting was part of the Big Tick Project with MSD and Bristol University.
Hiblio TV live broadcast from Torbay Hospital, June 22 2016
Dr Sandra Pearson, LDA’s medical director, talked live with Paul Norrish to raise awareness of ticks. This has now been added to Hiblio’s collection of health related videos on a number of topics. See our news item.
Exeter Clinical Research Facility, June 29 2016
A meeting to explore possible research projects.
Uplyme Village Fete June 11 2016
Trustee meeting, June 4 2016
Discussing progress and strategy for the next 6 months.
Primary Care Conference and Exhibition, NEC May 18-19 2016
The fifth year LDA has had a stand at this exhibition for health professionals working in Primary Care. Excellent awareness opportunities as well as networking with other organisations, including publishers of medical journals.
Lyme disease and ticks – what you need to know. May 10 2016
An awareness session in Sidbury village hall freely open to everyone. Approximately 36 people attended from local councils, walking groups and others.
RIPL Teleconference April 29 2016
Discussing testing and research projects with staff at the Lyme disease reference laboratory at PHE Porton.
NICE Guideline Scope Consultation, April 14 2016
We didn’t travel to this, but commenting on the draft scope of the Lyme guideline took a lot of time and effort. We submitted 56 comments and we hope the scope will be changed as a result.
Exeter University, March 16 2016
Discussion with the Microbes and Disease group with a view to sharing information and perhaps developing a research partnership.
East Budleigh WI March 8 2016
Presentation and discussion “Lyme disease: what everyone needs to know”. About 50 members in the village hall – two who had had Lyme disease and several who knew someone else who had been affected. The local Woodbury common is clearly a hotspot for ticks and the tubes of ticks were passed round with great interest – especially the one with the tiny nymphs.
Discussion with RIPL and HPRU EZI, February 23 2016
A meeting to present our point of view and to discuss Lyme disease research projects and possible ways forward with staff from RIPL and from the Health Protection Research Unit for Emerging and Zoonotic Infections at the University of Liverpool.
NICE Lyme Disease Guideline – Scoping Workshop, February 23 2016
Workshop for stakeholders to discuss the scope of the planned NICE guideline on Lyme disease. See our news item for a summary of what took place together with some links relating to the NICE guideline process.
U3A Lyme Regis February 19 2016
Presentation and discussion forum for University of the Third Age Lyme Regis Science and technology group. Approximately 40 people gathered to hear the presentation on “Who does what to whom” covering some science of the interaction between Borrelia, ticks, hosts and humans.
U3A Science group Weymouth, February 9 2016
Presentation and discussion forum for University of the Third Age Science group.
NordTick 2016 Conference in Sweden, February 2-4 2016
We presented a poster at this conference (yes, another – the 2nd in 2016!). See news items for the poster itself and a summary of proceedings.
Teleconference with Global Lyme Alliance, January 22 2016
Teleconference with the President and CEO of the USA organisation Global Lyme Alliance to discuss key areas of mutual interest.
NIHR HPRU EZI Conference, January 12 2016
The annual conference of the Health Protection Research Unit in Emerging Zoonoses and Infections, Liverpool. LDA presented a poster – “The response to Lyme disease as an emerging threat”. Read the report of the conference, and read our poster in latest news.
Café Scientifique Sidmouth, 17 November 2015
Presentation “Lyme Disease: who is doing what to whom?” followed by a discussion forum. These events are always interesting as members of the public ask quite searching questions. This particular event resulted in one person realising she had had inadequate treatment and another person questioning his diagnosis of polymyalgia.
AAAS Lyme Science & Solutions, Washington 17 November 2015
Participation and networking
Lyme Disease Association conference, Rhode Island “Lyme & Other Tick-Borne Diseases: Science Bridging the Gap“ November 14th – 15th 2015
Participation, networking and discussion. See Sandra’s report on the presentations in latest news here.
International Conference on Lyme Borreliosis and other Tick-borne Diseases Vienna September 27th – 30th 2015
Participation, networking and discussion
Bath & NE Somerset CCG Practice Nurse Forum meeting July 8th 2015
Presentation on “Lyme Disease” and question session requested by the CCG to help nurses’ education and awareness.
Café Scientifique, Teignmouth June 26th 2015
Presentation and discussion forum “Lyme Disease: who is doing what to whom?” Always an interesting and varied discussion after these presentations. Live ticks continue to be an eye-opener for many.
Royal Bath & West Show, Shepton Mallett 27th – 30th May 2015
First time attendance at this major outdoor show. Not convinced it was worth the effort as at a big show like this people were more interested in the stalls selling stuff and generally having a good time. We did manage to interest some children in the live ticks, though!
Primary Care, NEC Birmingham 20th – 21st May 2015
Continued presence at this large primary care exhibition continues to be fruitful. Many GP Practices asking for leaflets. Contacts made with medical journals – several articles in Nursing journals resulted from this.
PHE Porton Open day for GPs May 5th 2015
Presentation “Lyme disease” and question session. Very worthwhile and great to be invited. The GPs could see that if they wanted knowledgeable answers, they could ask LDA.
PHE Open Day 26th March 2015
All the presentations from this day are available here. LDA’s presentation was “Working together?”
Café Scientifique, Exeter 2nd March 2015
Presentation and discussion forum “Lyme Disease: who is doing what to whom?”
INVOLVE conference, NEC Birmingham November 26th – 27th 2014
Participation, networking. Brief presentation: “60 seconds on Lyme disease”
Café Sci, Dorchester October 22nd 2014
Presentation “Lyme disease: delving into dependent relationships”. Discussion forum on all aspects of Lyme disease.
RCGP Annual Conference, Liverpool October 1st-3rd 2014
Third year of attending the large exhibition at this conference, and another very good response from GPs and other health professionals.
Primary Care 2014, NEC May 21st-22nd 2014
For the third year we manned a stand at this exhibition. We also managed to get a presentation slot in the Public Health stream of the conference and our medical director was able to give an outline not just of Lyme disease and the uncertainties, but of the political difficulties that have shaped the current stance of doctors in the UK: Lyme disease; now you see it, now you don’t.
NorTick Conference February 5th-6th 2014
Held in Stavanger, this conference brought together about 70 heath professionals and researchers for discussions on tick-borne diseases. LDA had been invited to talk about the James Lind Alliance project prioritising known uncertainties in diagnosis and treatment of Lyme disease.
A summary of the presentations is on our latest news pages.
Public Health England Conference 9th October 2013
LDA contributed to this conference. This was the first Lyme disease conference held by PHE, and it is to be hoped there will be others. It was attended by clinicians, patients, health administrators and researchers.
Brief notes and speakers’ presentations are available in our news item.
Primary Care 2013, National Exhibition Centre May 22nd – 23rd 2013
This is the second year LDA has attended this national exhibition which attracts medical professionals from across the UK. Recent publicity, resulting from the Worldwide Lyme Disease protest, and also just the time of year, had raised some awareness of Lyme disease and many people stopped to watch our rolling presentation. It was surprising how many people asked about their own personal cases, or cases of relatives; if you hadn’t been told that Lyme disease is rare you would think it quite common!
The conference itself had some interesting presentations, including Emerging Infectious Diseases – What’s on the Horizon? Lyme disease, it appears, is not and is overshadowed by some very nasty viruses out there which may or may not reach the UK. If just a small proportion of the resources expended by UK organisations on currently exotic diseases was devoted to Lyme disease, we might be a lot further forward.
Royal College of General Practitioners Conference 2012 , Glasgow October 3rd – 5th 2012
We had a very positive response from GPs – much better than we expected. We didn’t have to leap out and engage people; they came to us, stopped and read the big stand and asked questions. Delegates could be grouped as follows, with the largest group first:
- “What is this – vaguely heard of it – tell me more – what do I need to know?”
- “I’m a GP in a rural practice; I’m seeing a lot of these cases.” (Generally Scotland but also Hampshire, Wiltshire and other areas too) Many struck by the 56% sensitivity of testing and agree not sensitive enough.
- “I have a number of patients who say they think they have LD” GP sceptical but wanting to know more and interested in the issues.
- A few discussed specific patient cases where they had perhaps wondered. During the discussion eyes got wider and in many cases the boxes were ticked and they will have returned with a decision to explore LD and at least get tests.
Overall, it is apparent that expertise in LD is vested in GPs – not in ID consultants. This backs up the Cottle et al 2012 paper. The exhibition was a good insight into the issues facing GPs and LDA will take a stand at the RCGP conference in October 2013 in Harrogate.