Welcome to our website

Your use of our website and information we provide constitutes your acceptance of these Terms and Conditions.

Lyme Disease Action reserves the right to modify or revise these Terms and Conditions at any time by posting changes online. Your continued use of this website after changes have been made constitutes your acceptance of these Terms and Conditions as modified by the posted changes. You agree to use the website only for lawful purposes. You may not use it in any way which is likely to, or does, damage our reputation.


Although this website is intended to provide medical and scientific information, it must not be used as an alternative to professional advice. Users must seek professional advice where appropriate.

Although care has been taken in preparing the information contained on this website, all information is provided ‘as is’ and on an ‘as available’ basis. Lyme Disease Action is not responsible for any errors or omissions or for any loss or damage suffered by users resulting from the information published on these pages.

The Information Standard

Lyme Disease Action shall hold responsibility for the accuracy of the information they publish. Neither the Scheme Operator nor the Scheme Owner shall have any responsibility whatsoever for costs, losses or direct or indirect damages or costs arising from inaccuracy of information or omissions in information published on the website on behalf of Lyme Disease Action.


Lyme Disease Action provides links to other websites, however we are not responsible for the content of external Internet sites.

If you have concerns about the content of any linked website or any website associating itself with Lyme Disease Action please email the Webmaster.


All material on this website is either owned by Lyme Disease Action or is reproduced under copyright license.

These pages may be used for personal, educational or commercial purposes to raise awareness of Lyme Disease provided that: copyright and source indications are also acknowledged.

Where the copyright in printed material has been licensed to Lyme Disease Action by third parties permission to print or copy this material must be requested from the copyright owners.

Photographs and personal stories used on this website depict real people. The written permission of Lyme Disease Action and the individual must be obtained prior to the printing or copying of this material. Please contact the Webmaster.

The Data Protection Act

Lyme Disease Action is registered with the Information Commissioners Office. We have a legal duty under the terms of the Data Protection Act 2018 and the General Data Protection Regulation (GDPR) to protect any personal information you supply to us, or we collect about you. This data will not be disclosed to anyone outside Lyme Disease Action without your permission unless there is a legal obligation to do so.

Privacy Policy

This policy explains how we collect information about you and what we do with it. This policy may be updated from time to time, so please check it regularly.

1. How do we collect information?

We obtain personal information from you when you make purchases from our shop, book to attend our conferences, make a donation, engage in fundraising for us, volunteer with us or email us to ask for information. We may also receive information about you from third parties, but only if you have requested us to do this.

2. What information do we hold about you?

Lyme Disease Action will hold the information you provide to us when you interact with us via this website or otherwise. Depending on what you provide, this could include, in addition to name and email address:

  • demographic information such as date of birth and address;
  • medical information about yourself or your family;
  • financial information provided when donating to LDA or purchasing from our on-line shop.

3. How do we use this information?

We will only use your personal information to provide you with the services, products or information you have requested, for administration purposes and to further the charitable aims of Lyme Disease Action. Some of the uses include:

  • responding to correspondence you have sent;
  • processing an order from our on-line shop;
  • processing a donation you have made;
  • processing an order for a place at our conference;
  • sending you information and news;
  • asking for your input to consultations or media enquiries;
  • data analysis and research.

We will not use your data in any way incompatible with the purpose for which it was supplied. For example, if you purchase an item from our on-line shop, your personal data will only be used to fulfil that order. We will never pass your name, address or contact details to third parties without your explicit consent.

4. How do we protect personal information?

We take appropriate measures to ensure that the information disclosed to us is kept secure, accurate and up to date and kept only for so long as is necessary for the purposes for which it is used.

It is your responsibility to ensure your computer or device, and your connection to any service, is secure. Communication with LDA is at your own risk. Although we will do our best to protect your personal data, we cannot guarantee the security of your data transmitted to us via any device from which you may email us.

5. Your consent

By providing us with your personal data, including sensitive personal data such as on your health, you consent to the collection and use of any information you provide in accordance with the above purposes and this privacy policy.

6. Changes

If your contact details change, please help us to keep your information up to date by notifying the webmaster.