The resources you want depend to a certain extent on who you are, but there is no hard and fast rule, so browse the whole section.
If you have been diagnosed with Lyme disease you may need to draw some of this information to the attention of your employer or your doctor.
We are sharing our analysis of some Research Papers as many people do not have easy access to the medical journals where these are published.
On each of the information pages of our website, we provide links to the papers we have used – see the References section at the end of each page. Sometimes those links will provide you with a full copy of the paper but sometimes only the abstract (a summary of the findings) will be openly available. LDA has obtained, and read, the full paper in all cases, but the limitations of copyright mean we cannot make the paper available to everyone.
At some point you may need to delve deeper and look at recently published papers. The main places to find further information are listed on the DIY page.
Searching the Internet
LDA recognises the increasing importance of the Internet for the education and support of patients but it is important to be careful about what you read.
- Google AI: when you ask Google a question, you will get a summary answer which might look useful. If you expand the text, you may not read as far as the bit at the bottom which says “may contain mistakes”. You don’t know where the mistakes are, so it would be safer to look elsewhere for an answer. Marie Curie, Macmillan and the Patient Information Forum conducted an investigation and produced an important report on this: Google AI Search results and the Health Sector.
- Trustworthy websites. Many charitable and NHS organisations are accredited to the PIF TICK which ensures they have proper processes in place to ensure their information is evidence based, up to date and easy to read. The list of organisations is here and you can search by category, including things like gut & bladder, self care, mental health etc.
Lyme disease can affect many parts of the body, so you will have questions.
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