NICE Guideline

The full Guidelines was published in April 2018 and can be accessed here. The Guideline includes recommendations on

  • symptoms to consider
  • tests to use
  • treatment for children and adults.

How NICE Guideline came about

LDA first asked for UK guidelines in 2006.

In February 2008 88 MPs signed the following Early Day Motion in Parliament –

That this House acknowledges that Lyme disease, also known as Lyme borreliosis, is a serious and potentially chronic disease which is becoming more widespread across the United Kingdom; notes the growing body of evidence which suggests patients with the disease are frequently subject to misdiagnosis and under-treatment; is concerned that the disease appears to be under-reported and inadequately investigated; and calls upon the Government to put in place a national strategy for reducing the growing toll of ill-health caused by this disease, including the development of clinical guidelines specific to the UK for the use of all medical professionals dealing with patients with this disease.

November 2015 it is announced that The National Clinical Guideline Centre has been commissioned by NICE to develop a clinical guideline on Lyme disease at the request of NHS England.

The NICE history page for this guideline is the place to look for all the official documents created during the course of development including lists of stakeholders, committee members, minutes of meeting, draft and final documents. Also here are the evidence reviews that were used to draw up the guideline.

NICE process and links

Further information

Guideline commissioned LDA Newsletter explanation
Stakeholder organisations start registering See list of stakeholders
Chair of guideline committee appointed Dr Saul Faust
Scoping Workshop to gather feedback on what the guideline should cover February 23rd 2016
Publication of draft scope for consultation Deadline 14th April 2016,
Advertisement for specialist and lay committee members Deadline 14th April 2016,
Interviews and appointment of committee members See news item on interviews

News on 2nd round of recruitment
First committee meeting September 14th, 15th 2016
Final scope published, defining what the guideline will cover See news item on final scope.
Draft clinical questions
Search for evidence in medical literature
Draft guideline
Consultation on draft guideline Sept 25 – Nov 6 2017

See LDA news.
Publication of completed guideline see LDA news item.