What we do
Lyme Disease Action exists to address the current lack of awareness of Lyme disease amongst the public and the medical profession.
The Public is often unaware that ticks can carry disease. Patients may ignore a rash and being unaware of the significance of some symptoms, do not relate them to their GP. Thus easily diagnosed early Lyme disease can become very difficult-to-diagnose late and chronic Lyme disease.
Doctors often believe that Lyme does not exist in their area, they do not recognise the rash and they are unaware of the wide variation of symptoms that can affect almost every part of the body. In early 2013, following a James Lind Alliance project, we published a list of verified uncertainties in the treatment and diagnosis of Lyme disease. Our task now is to spread this to medical professionals who may believe that diagnosis and treatment is straightforward.
We are also working with Researchers through the National Institute for Health Research and other bodies to ensure that these known uncertainties are taken up as topics for research.
2012 saw a shift in national policy and the Department of Health and Public Health England are now working with LDA to improve awareness and tackle the uncertainties.
These pages are here to provide information on these issues and to keep everyone aware of what this charity is doing to improve the situation for those who suffer from Lyme disease and other tick borne diseases.