Bitten by a Tick?
Suspect Lyme Disease?
Does Lyme disease persist?
So much talked about Lyme disease; so little known! We have documented that the best drug, dose¬†and duration of treatment are unknown. A recent interview with one of the key basic researchers has now laid out clearly the evidence on persistence of¬†bacteria following treatment. But as this interview highlights
- we don’t know whether persisting¬†bacteria are infectious;
- biofilms around bacteria may, or may not, be one of the mechanisms for persistence;
- the studies are in the lab¬†and on animals, not humans.
Perhaps it is time to enrol every UK patient given treatment for Lyme disease in a study with a long term follow up to see what happens in real life; and to record how recovered the patient feels, as opposed to what the doctor can measure.
1st PHE Lyme Conference
With speakers from England, Wales and Scotland and from Public Health England (PHE)¬†and patient charities, this brought a wide range of presentations. It allowed discussion of the current state of Lyme disease diagnosis and treatment in the UK and was the first opportunity for patients to find out PHE plans and to hear first hand from those who are organising the service for Lyme disease patients.
All the presentation slides have been made available by PHE and are now individually available here, together with brief notes.
A very positive day with a commitment to further actions.
What we do
Lyme Disease Action exists to address the current lack of awareness of Lyme disease amongst the public and the medical profession.
The Public is often unaware that ticks can carry disease. Patients may ignore a rash and being unaware of the significance of some symptoms, do not relate them to their GP. Thus easily diagnosed early Lyme disease can become very difficult-to-diagnose late and chronic Lyme disease.
Doctors often believe that Lyme does not exist in their area, they do not recognise the rash and they are unaware of the wide variation of symptoms that can affect almost every part of the body. In early 2013, following a James Lind Alliance project, we published a list of verified uncertainties in the treatment and diagnosis of Lyme disease. Our task now is to spread this to medical professionals who may believe that diagnosis and treatment is straightforward.
We are also working with¬†Researchers through the National Institute for Health Research and other bodies to ensure that these known uncertainties are taken up as topics for research.
2012 saw a shift in national policy and the Department of Health and Public Health England are now working with LDA to improve awareness and tackle the uncertainties.
These pages are here to provide information on these issues and to keep everyone aware of what this charity is doing to improve the situation for those who suffer from Lyme disease and other tick borne diseases.