Knowns and Unknowns

These pages tell some of what is known about Lyme disease. They also point out that there is much that is uncertain.

LDA has started a process to document the uncertainties. Patients and clinicians across the UK have contributed to a survey and we have now moved on to the next stage of compiling the results.

Read about the process on our research page to see what will happen next.

Conference 2011

Took place on Saturday 17th September at Wills Hall, University of Bristol

“An Exciting conference”

“It is good to see we are moving forward”

Presentations from the conference can be viewed here.

What we do

Lyme Disease Action exists to address the current lack of awareness of Lyme disease amongst the public, the medical profession and the Department of Health and its Agencies.

The Public is often unaware that ticks can carry disease. Patients may ignore a rash and being unaware of the significance of some symptoms, do not relate them to their GP. Thus easily diagnosed early Lyme disease can become very difficult-to-diagnose late and chronic Lyme disease.

Doctors often believe that Lyme does not exist in their area, they do not recognise the rash and they are unaware of the wide variation of symptoms that can affect almost every part of the body.

The Department of Health is guided by the Health Protection Agency and believes that awareness and diagnostic capability amongst doctors is adequate.

The Health Protection Agency (HPA) believes that Lyme disease is rare, easily curable if caught early and readily diagnosed by their tests. The HPA also believes that chronic Lyme disease does not exist.

These pages are here to provide information on these issues and to keep everyone aware of what this charity is doing to improve the situation for those who suffer from Lyme disease and other tick borne diseases.