Lyme Disease Action has funded a process to discover some of the uncertainties in Lyme disease diagnosis and treatment. Through a James Lind Alliance Priority Setting Partnership patients and clinicians contributed to a nationwide survey which resulted in 81 potential uncertainties.
Following a search of systematic reviews an independent information specialist confirmed that:
- 7 questions have known answers
- 5 are the subject of a current trial
- 69 questions need further research
These 69 were consolidated and an on-line survey gave rise to the top 26. From these a group of doctors and patients decided on the top 10 shared priorities.
The process is described fully on the Research page where you can read about the process, the uncertainties and the final top 10 priorities for UK research.