LDA starts work on specialist clinic

LDA is starting a project to develop a specification for a specialist NHS clinic for Lyme disease.  We have been trying to prompt this for years and even had support from a House of Lords debate, but nothing has happened. So if doctors have not the time to do this, patients will make the time. […]

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Press release – Lyme disease clinic

Lyme disease – patients to start designing clinic Leading Lyme disease charity, Lyme Disease Action (LDA), is commencing a project to develop a specification for a specialist NHS clinic for Lyme disease. Using co-production methods, patients will work together with the whole range of health professionals and researchers who ultimately will be involved in any […]

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Lottery of care

A recent study has highlighted that patient care within the NHS is not streamlined. It is, in fact a lottery. Even in areas where Lyme disease is acknowledged to have a higher incidence, GPs seem unaware of NICE guideline recommendations. On one day this month, we had 2 contrasting emails which illustrates this perfectly. Case […]

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UK incidence of Lyme disease

Up until today, all anyone could say in answer to the question “how many people catch Lyme disease each year in the UK?” is “we don’t know!” Doctors would argue “it’s a very small number – only 1200 cases a year”. However, that figure of about 1,200, the only one we have had so far, […]

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NICE Quality Standard

NICE has now published Quality Standards for Lyme disease. The aim is to highlight priority areas of the NICE guideline in order to improve care. The 4 areas being emphasised are: The EM rash should be treated without waiting for a blood test. Those who have a negative test early on in infection, should be […]

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NICE Quality Standard consultation

The draft Quality Standard for Lyme disease has been issued for consultation. The aim of the Quality Standard is to raise standards by emphasising some key points with health professionals: Treat a Lyme disease rash without a blood test because the test may be negative at this stage. If a rash has not been seen […]

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A dangerous “miracle” solution

LDA has received a warning from the National Food Crime Unit (NFCU) about the dangers of using Sodium Chlorite products in treating Lyme disease.  Products containing Sodium Chlorite are being openly promoted as a treatment (even cure) for Lyme disease.  A simple web-search for Miracle Mineral Solution or Master Mineral Supplement (MMS) and Chlorine Dioxide […]

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Another Guideline – France this time

France has finally published its National Protocol “Lyme and tick-borne diseases: go beyond controversy and propose a solution to everyone”. Why the marketing hype? What is their solution? The French treatment recommendations actually fall short of what NICE recommends: they give only 14 days treatment for EM, 28 days maximum treatment (for late Lyme neuroborreliosis […]

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Spotlight on Lyme disease

Lyme Disease Action (LDA) is really pleased to announce that once again it has the opportunity of developing real-world tools to support clinicians. In line with its core purpose to strive for “the prevention and treatment of Lyme disease and associated tick borne diseases”, LDA is co-funding a Royal College of General Practitioners (RCGP) “Spotlight […]

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NICE Guideline – LDA’s reaction

Lyme Disease Action (LDA) broadly welcomes the NICE Guideline published this week. It is not the ‘game changer’ some may have been hoping for. But nor are any perceived shortcomings cause to demand their wholesale withdrawal, as is being suggested in some quarters. LDA feels now is not the time to “throw the baby out […]

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