Newsletter for May 2013

Here is our latest update summarising our progress over the last year, potential new tests, changes to the Public Health England website, and more. Download your copy here.

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Borrelia miyamotoi – new or old?

On 17th January 2013 news from America announced the discovery of ‘a new tick-borne infection that shares many similarities with Lyme disease’. The bacteria, which is not new, is called Borrelia miyamotoi , a relative of those which cause Lyme disease. Genetically, it is more closely related to the relapsing fever group of spirochaetes. Borrelia [...]

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Longer treatment: better outcome

‘Management of suspected Lyme borreliosis: experience from an outpatient antibiotic therapy service.’ White B, Seaton RA, Evans TJ. QJM 2013; 106:133–38. Lyme disease in a Glasgow ID Clinic This study looks at the ‘real world experience’ of an infectious diseases clinic in Glasgow using Outpatient Parenteral Antibiotic Treatment (OPAT), in the form of intravenous ceftriaxone, [...]

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There are uncertainties

Lyme Disease Action has funded a process to discover some of the uncertainties in Lyme disease diagnosis and treatment. Through a James Lind Alliance Priority Setting Partnership patients and clinicians contributed to a nationwide survey which resulted in 81 potential uncertainties. Following a search of systematic reviews an independent information specialist confirmed that: 7 questions [...]

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Map of medicine for Lyme disease will be back!

Map of Medicine (MOM) is a collection of evidence-based, practice-informed care maps which connect all the knowledge and services around a clinical condition. A care map was produced for Lyme disease in January 2010 but at its review date in 2012 a decision was taken not to update it. LDA has had discussions with MOM [...]

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BMJ publishes LDA letter

The British Medical Journal (BMJ) has published a letter from LDA’s Medical Director, Dr Sandra Pearson, and Chairman Stella Huyshe-Shires. This letter was written in response to an article which was intended to provide advice to doctors when a patient presents with a tick bite, rash and concerns about Lyme disease. The original article was [...]

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US Congressional hearing on Lyme disease

LDA participated in a US Congressional hearing on 18th July 2012 : “Global Challenges in Diagnosing and Managing Lyme Disease – Closing Knowledge Gaps”. Witnesses testifying were: Stephen W. Barthold, Distinguished Professor, Department of Pathology, Microbiology and Immunology Center of Comparative Medicine, School of Veterinary Medicine University of California, Davis Raphael Stricker, M.D., Vice President, ILADS [...]

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2,200 signatures and counting

Lyme disease sufferer Denise Longman launched a petition in April 2010. This is still open and collecting signatures . You can read the detail of the petition and browse other people’s comments. In addition to the on-line signatures nearly 1,000 names have been collected on paper forms by people canvassing friends and relatives. A downloadable form is [...]

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Map of Medicine care map for Lyme disease suspended

Map of Medicine (MOM) is a collection of evidence-based, practice-informed care maps which connect all the knowledge and services around a clinical condition. A care map was produced for Lyme disease in January 2010 but at its review date in 2012 a decision was taken not to update it. The reasons given by the production [...]

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Lyme disease in the BMJ

The June 23rd edition of the BMJ had a large tick on the cover heralding a couple of articles inside in this week’s Practice section: Tick bite and early Lyme Borreliosis: a 10 minute consultation Lyme neuroborreliosis: a patient’s journey. The 10 minute consultation discussed what steps a doctor should take in investigating a rash [...]

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