Primary Care exhibition

Lyme Disease Action has just spent a very busy and successful couple of days, taking part in the Primary Care and Public Health event at the NEC in Birmingham. The event, in its 27th year, is considered to be the UK’s leading exhibition and conference event for a wide range of Primary Care and Public [...]

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APPG for Lyme disease

Two MPs, Simon Hoare and Michelle Donelan, have established an All Party Parliamentary Group (APPG) for Lyme disease. This follows several discussions with MPs through various patients and patient groups over many years, most recently a patient Deborah Collins who organised a meeting for MPs at Portcullis House through her MP in February this year. Simon [...]

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Training the first aid trainers

LDA attended a conference for first aid trainers in Dunfermline on March 3rd 2017. This was run by the First Aid Training Cooperative to provide information for trainers in Scotland and the North of England.     We held two workshops and were able to show delegates tubes of ticks (my goodness how small they [...]

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Roundtable discussion with vets

LDA’s medical director Dr Sandra Pearson was once more included in the group of experts meeting for a round table discussion of tick-borne diseases in companion animals and humans. This took place in Birmingham on February 17th and had the aim of producing an awareness raising article. As well as LDA, the Universities of Bristol [...]

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Briefing for MPs

LDA met with a small group of MPs, their representatives and a member of the House of Lords at Portcullis House on 16/11/2016. The meeting was facilitated and chaired by Hugo Swire MP. Those present were: Simon Hoare MP Oliver Letwin MP Natalie McGarry MP Martin Vickers MP Teresa Pearce MP Derek Twigg MP Baroness [...]

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CQC want to know about your care

This coming week is the Care Quality Commission’s InvisibleConditions campaign and Monday is highlighting Lyme disease. The Care Quality Commission needs people with invisible or long term conditions, like Lyme Disease, to tell them about the quality of care they have experienced, good or bad. Your experiences will help CQC inspectors decide when, where and [...]

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CDC downgrades estimates of PTLD

Mary Beth Pfeiffer of The Huffington Post continues to follow developments in the Lyme disease saga with this latest blog. This focuses on the revised (reduced) estimate of Post Treatment Lyme Disease (PTLD) by the CDC in the USA. It seems that this revised incidence of post-treatment symptoms has been based on long-term follow-up of [...]

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NICE update – Equality Impact Assessment v2

The first Equality Impact Assessment published by NICE back in March 2016 raised the possibility that EM on dark skin might need drawing to the attention of doctors. However, the decision was that clinicians were used to assessing rashes on all populations so this didn’t need a separate recommendation. That first assessment also raised that [...]

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August newsletter

On our newsletter page, the August 2016 newsletter contains brief articles on – LDA conference: Moving forward – a preview of what we are going to hear and discuss NICE: also on the move – the latest developments in the NICE guideline process PHE doctors’ day – some detail of the doctors’ day that Public [...]

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NICE final scope

NICE has published an updated stakeholder list, the the final scope of the Lyme disease guideline and the comments received by NICE on the draft scope – see the NICE Lyme disease page for all documents. Many stakeholder comments have resulted in changes to the scope, but for various reasons (which are published) many have [...]

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