The draft scope for this guideline has now been issued for consultation. Some changes have been made following the scoping workshop, and the official workshop notes can now be viewed on the NICE website, so you can see the variety of the discussions. LDA will be submitting a written response because there are a fair number [...]
more...See our main NICE Guideline page for information and links. Stakeholders from industry, the public, professions and NHS joined the scoping workshop held on Tuesday 23 February in London: 8 people with a patient & public view: 2 from Lyme Disease UK, 2 from Lyme Research UK, 1 from Facial Palsy UK and 2 from [...]
more...Held in Sweden, February 2-4 2016, this was organised by the Norwegian Tick Research Network (NorTick) and the Swedish tick research network SNÄFF (Sveriges NÄtverk av Fästing Forskare). A Nordic conference on Ticks and Tick-borne diseases bringing together the leading scientists of that field in Norway, Denmark, Sweden and Finland. NordTick in numbers: 113 delegates [...]
more...LDA presented this poster at the NordTick 2016 conference: Lyme Borreliosis – A model for improved diagnosis. The aim was to explain to the conference delegates (scientists and doctors) that Lyme disease is an emerging disease in the UK Awareness amongst the public is low Awareness amongst doctors is low Many people go undiagnosed and under treated [...]
more...The first for 6 months – sorry for the gap, but we have been tied up with other things. This newsletter contains brief articles on- A new year underway – progress that has happened over the past months, and the action plan we are pushing forwards. Lyme@JohnCaudwell.com – some observations. Press coverage – links to [...]
more...HPRU EZI – LDA poster This week LDA attended the annual conference of the NIHR Health Protection Research Unit in Emerging and Zoonotic infections in Liverpool. This had the theme “The response to Ebola and other emerging threats”. LDA had a poster presentation accepted: “The response to Lyme disease as an emerging threat”. Who has responded, [...]
more...Lyme and Other Tick-Borne Diseases: Science Bridging the Gap: Lyme Disease Association 16th Annual Conference, November 14 & 15 2015, Rhode Island, USA Report from Dr Sandra Pearson, Lyme Disease Action’s Medical Director, who attended the conference. The conference was opened by Patricia Smith, President of the Lyme Disease Association, who gave an overview of [...]
more...A group of patients on the LDUK discussion board felt they didn’t know what LDA’s role was or where we stand on various issues. Although much of this information is on our website it is not easy to find, particularly for those who primarily use phones for internet browsing. It was clear that some people [...]
more...A media campaign on infectious diseases was launched today, 1st December, and includes an article on Lyme disease. There is a print supplement in The Independent and a website with more information. This campaign will run for a few months and print versions will be distributed at international conferences. Because this will attract readership amongst doctors, [...]
more...On Thursday 22nd October, the Lords held a short debate on Lyme disease in Grand Committee. To ask Her Majesty’s Government what action they are taking to combat Lyme disease and other tick-related illnesses. Prior to the debate LDA had issued a House of Lords Briefing, providing sections on basic facts on Lyme disease, what [...]
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