Where do we find ourselves at the start of 2014? On December 16th LDA had a meeting at the Department of Health. The purpose was to use cases documented through LDA’s help desk to highlight to the Department the shortcomings in the current provision of care for Lyme disease patients. We have made them aware […]
more...The Collaboration for Leadership in Applied Health Research and Care for the South West Peninsula (PenCLAHRC) held a conference in Exeter in November – “New developments in public involvement in research“. LDA submitted an abstract for a presentation and was delighted to be given a slot for a poster presentation. Drafting of the abstract was back in […]
more...In a further move to foster international cooperation, LDA arranged for one of IGeneX directors, Dr Jyotsna Shah, to come to RIPL this week to discuss testing for Lyme disease. The meeting improved everyone’s understanding and established a good working relationship for the first time. IGeneX understand now that CDC criteria for the number of […]
more...LDA’s latest newsletter is now available. This has news on Public Health England conference with links to presentations & comments Joint action plan for Lyme disease – coordinated by PHE Plans for official UK Guidance for Lyme disease Patient & Clinician support provided by LDA This is all newsworthy. We’re not sure what is most remarkable, […]
more...Cathy Rubin of the Huffington Post has interviewed Monica Embers about her team’s studies of Borrelia burgdorferi in rhesus macaque monkeys. This is a very good summary, with key references, of what we do and don’t know in this field. Monica Embers says: “While we have shown that intact Borrelia spirochetes can persist following a […]
more...22nd October 2013 – Topical questions: Oral Answers to Questions on Health Duncan Hames (Chippenham, Liberal Democrat) said – A written answer from the former Minister, my hon. Friend Anna Soubry, to my recent parliamentary question has on this subject revealed that people living in the south-west of England are three times as likely to […]
more...The first PHE Lyme Disease Conference – 9 October 2013 The following are brief notes on what was said. See PDFs for speakers’ slides. Introduction: Countess of Mar Background of conflict & uncertainty creates difficulty for both patient & physician. Effectiveness of antibiotics. Co-operation and help of Porton, praise for Tim Brooks in organising the conference. […]
more...The Public Health England Lyme disease conference programme has been announced and registration has opened. The conference is free to attend, but places are limited (to about 100) so early booking is advisable. Date: Oct 9th 2013, 10.00 – 16.00 Venue: Coin Street Conference Centre, London (near Waterloo) The aim of the day is to bring everyone up to […]
more...After a relative contracted Lyme disease an dhad difficulty getting treatment, Kerry White has decided to run the “Run to the beat” half-marathon around Greenwich Park in London on Sunday 8th September to raise money for us. This wil be a great achievement, so please support Kerry.
more...As announced at the LDA conference in Guildford last month, LDA had a meeting scheduled at PHE Porton. The meeting was with Dr Tim Brooks, who runs the specialist Lyme disease testing laboratory and also Dr Matthew Dryden who will be running the national Lyme disease referral clinic in Winchester, starting in November. A group […]
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